Starting February 25 2018, 05:00 PM
Ending March 01 2018, 05:00 PM

Travel Stipend Application for Rare Disease Week on Capitol Hill 2018

Rare Disease Week on Capitol Hill brings rare disease community members from across the country together to be educated on federal legislative issues, meet other advocates, and share their unique stories with legislators. In 2018, it will be held from February 25th through March 1st in Washington, DC.


In order to enable more advocates to attend, the EveryLife Foundation will offer a limited number of travel stipends. Stipend awardees in Maryland and Virginia will receive $400, and awardees in the rest of the continental United States will receive $800. Stipend awardees in Alaska, Hawaii and Puerto Rico will receive $1000.

THE DEADLINE TO APPLY WAS DECEMBER 10th. However, we did not receive applications in several states so we are keeping the application open. Anyone who applies after December 10th will be added to the waitlist.


Stipend recipients are required to attend the Legislative Conference on February 26th and Lobby Day on February 27th. For more information on the week of events, please visit

The registration deadline for this event has passed.