Sat, Jul 15, 2017
8:30 AM - 4:30 PM

RARE on the Road Portland

Are you new to advocacy and not sure where to start to make a difference in the lives of those with a rare disease? Join the EveryLife Foundation and Global Genes for RARE on the Road in Portland, Oregon for the opportunity to learn from and connect with other rare disease patients and caregivers in your community. This free event will highlight topics from capacity building to a patient’s role in drug development, with breakout sessions and hands-on workshops.

Saturday, July 15th, 8:30am – 4:30pm

Shriners Hospital for Children

Free parking is available on-site. If using public transportation, take Tri-Met bus #8 Jackson Park from downtown Portland. The conference is located on the 7th floor in the auditorium.

Click here to view the RARE on the Road Portland agenda.

Unfortunately, due to limited capacity, we are unable to accommodate children this year. We apologize for any inconvenience.

Please note: The EveryLife Foundation for Rare Diseases and Global Genes reserve the right to use any photograph and/or video taken at this sponsored event without the expressed written permission of the individuals captured within the photograph and/or video. Global Genes and the EveryLife Foundation may use the photograph and/or video in publications or other media material it produces, uses or contracts to produce including but not limited to websites, brochures, social media, invitations, etc.

Event Location

Shriners Hospital for Children
3101 SW Sam Jackson Park Road
Portland, OR 97239


The registration deadline for this event has passed.