Wed, Dec 04, 2019
11:30 AM - 12:30 PM
December 4th Rare Disease Congressional Caucus Briefing
Rare Disease Legislative Advocates in cooperation with the Rare Disease Congressional Caucus invite you to a Rare Disease lunch briefing:
The Economic Burden of Rare Diseases
Wednesday, December 4, 2019, from 11:30 a.m. until 12:30 p.m.
Capitol Visitor Center, SVC Room 203-02
Lunch will be provided
You must have a government issued I.D. to enter the Captiol Visitor Center
Deadline to register is December 1st.
Monica Weldon, Bridge the Gap-Syngap (moderator)
Elisabeth Oehrlein, National Health Council
Michael Adelberg, Faegre Baker Daniels Consulting
Becky Abbott, National Foundation for Ectodermal Dysplasias
Kristen Vanags, Georgia PKU Connect
Annie Kennedy, EveryLife Foundation for Rare Diseases