Starting October 01 2019, 12:00 AM
Ending December 02 2019, 11:55 PM

Travel Stipend Application for Rare Disease Week on Capitol Hill 2020

Rare Disease Week on Capitol Hill brings rare disease community members from across the country together to be educated on federal legislative issues, meet other advocates, and share their unique stories with legislators. In 2020, it will be held from February 25th-28th in Washington, DC.


In order to enable more advocates to attend, the EveryLife Foundation will offer a limited number of travel stipends. Stipend awardees in Maryland and Virginia will receive $400, awardees in Alaska, Hawaii, North Dakota, and Puerto Rico will receive $1000, and awardees from the other 45 states will receive $800.


Stipend recipients are required to attend the Legislative Conference on February 26th and the Hill Day on February 27th but may attend the other events as well. For more information on the week of events, please visit The Application deadline to apply for a Rare Disease Week on Capitol Hill 2020 Travel Stipend is December 2nd, 2019.  All that apply will be notified by December 20th, 2019. If you have any questions, please contact RDLA staff, Shannon von Felden, at

*Any young adult under the age of 18 who receives a travel stipend must travel with an adult chaperone.*

*Only one travel stipend per family can be awarded.*