Mon, Sep 16, 2019
12:00 PM - 1:00 PM

Special RDLA Drug Pricing Legislative Webinar

   

Special RDLA Drug Pricing Legislative Webinar

Monday, September 16th: 12:00 pm to 1:00 pm ET 

 

In response to questions and requests from the rare disease community to better understand the impact of potential drug pricing legislation on rare diseases, RDLA is bringing together some policy experts to provide their perspectives and answer questions. 

Speakers


1. Stuart Portman, Health Policy Advisor, Senate Committee on Finance

2. Joel White, President Horizon Government Affairs
3. Eric Gascho, Vice President, National Heath Council
4. Community Congress Drug Pricing Statement, Julia Jenkins, Executive Director, EveryLife Foundation
 

Due to large number of attendees on the RDLA webinars that prevents us from unmuting the lines, we encourage advocates to email questions ahead of time to svonfelden@everylifefoundation.org.  


RDLA convenes in person and/or over the phone to discuss legislation and developments that affect the rare disease community. The meeting/conference calls are essentially a clearing house for legislation and participation does not imply support for any of the policy proposals or legislation that are discussed or promoted.

These meetings help facilitate open dialog about legislation that affects the rare disease community. They are open to the public and the media. We ask that media formally announce their participation and refrain from quoting any of the discussion during the meeting. We encourage media to follow up with participants after the meeting for direct quotes.



Register for this event