Wed, Sep 11, 2019
12:30 PM - 2:00 PM

September 11th Rare Disease Congressional Caucus Briefing

Rare Disease Legislative Advocates in cooperation with the Rare Disease Congressional Caucus invite you to a Rare Disease lunch briefing:

The Importance of the Newborn Screening Saves Lives Act

Wednesday, September 11, 2019, from 12:30 p.m. until 2:00 p.m.

Russell Senate Office Building, Room 188

Complimentary lunch included

Registration available on-site 


Rahul Gupta, MD, MPH, MBA, FACP, Senior Vice President and Chief Medical and Health Officer, March of Dimes

Nisha Quasba, Specialist, Public Policy, Association of Public Health Laboratories

Erica Barnes, Newborn Screening Advocate

Kelly Waterman, Parent Advocate for ALD

For questions about this briefing, please contact Shannon von Felden, RDLA Program Manager, at

Register for this event