Thu, Jul 25, 2019
1:00 PM - 3:00 PM

Rare Across America 2019 Webinar

Rare Across America takes place in Member's district offices during the August recess from July 29th to September 8th. Rare Disease Legislative Advocates (RDLA) staff organizes meetings for rare disease advocates with their Members of Congress and/or the Member’s staff. The RDLA team also helps to prepare advocates for their meetings, providing legislative resource materials and hosting pre-meeting training webinars.

The Rare Across America training webinar to prepare advocates for their meetings will take place on Thursday, July 25th at 1 pm EST. This webinar will provide information on partcipant's schedules, logistical information, how to tell your patient stories, and the "legislative asks".

If you have any questions, please contact Shannon von Felden at svonfelden@everylifefoundation.org. 



Register for this event