Wed, Feb 27, 2019
2:00 PM - 3:00 PM

Livestream: Rare Disease Congressional Caucus Briefing February 27

 

Rare Disease Legislative Advocates in coordination with Rare Disease Congressional Caucus

Co-Chairs Representatives G. K. Butterfield (D-NC) and Gus Bilirakis (R-FL)

and Senators Roger Wicker (R-MS) and Amy Klobuchar (D-MN) invite you to view:

Livestream 

Rare Disease 101

Wednesday, February 27, 2019

2:00- 3:00 pm ET

Moderator: Mark Dant, Board Chair, EveryLife Foundation for Rare Diseases

Speakers:

Representative G.K. Butterfield

Representative Gus Bilirakis

Marshall Summar, MD, Director, Rare Disease Institute, and Chairman, National Organization for Rare Disorders

Chris Austin, MD, Director, National Center for Advancing Translational Sciences, National Institutes of Health

Janet Maynard, MD, Acting Director, Office of Orphan Products Development, Food and Drug Administration

Pilar Magoulas, MS, CGC, Baylor College of Medicine

Angie Rowe, Interim Executive Director, Global Genes

 



The registration deadline for this event has passed.