A Program of the EveryLife Foundation for Rare Diseases
Wed, Dec 12, 2018
12:00 PM - 2:00 PM
Rare Disease Week on Capitol Hill 2019 Informational Webinar
Rare Disease Week on Capitol Hill brings rare disease community members from across the country together to be educated on federal legislative issues, meet other advocates, and share their unique stories with legislators. This webinar will cover each of the events of Rare Disease Week on Capitol Hill, as well as inform attendees about travel stipends, patient stories, and logistical information.
The registration deadline for this event has passed.