Starting October 08 2018, 05:00 PM
Ending December 15 2018, 09:00 AM

Travel Stipend Application for Rare Disease Week on Capitol Hill 2019

Rare Disease Week on Capitol Hill brings rare disease community members from across the country together to be educated on federal legislative issues, meet other advocates, and share their unique stories with legislators. In 2019, it will be held from February 24th-28th in Washington, DC.


In order to enable more advocates to attend, the EveryLife Foundation will offer a limited number of travel stipends. Stipend awardees in Maryland and Virginia will receive $400, and awardees in the rest of the continental United States will receive $800. Stipend awardees in Alaska, Hawaii and Puerto Rico will receive $1000.


Stipend recipients are required to attend the Legislative Conference on February 25th and Lobby Day on February 26th. For more information on the week of events, please visit

The Application deadline to apply for a Rare Disease Week on Capitol Hill 2019 Travel Stipend is December 14th, 2018.  All that apply will be notified by December 21st, 2018.

Any young adult under the age of 18 who receives a travel stipend must travel with an adult chaperone.

The registration deadline for this event has passed.