Starting February 26 2018, 09:00 AM
Ending February 27 2018, 05:00 PM

2018 Legislative Conference and Lobby Day

The Legislative Conference will take place on Monday, February 26th, at 9am to 4:15pm at the Ronald Reagan Building at 1300 Pennsylvania Ave NW in Washington, DC. Registration will open at 8:00am. Join us to learn about key federal legislative issues, meet other advocates, and learn best practices for building effective relationships with Members of Congress and their staff. Attendance at the Legislative Conference is required in order to participate in Lobby Day.

While we strongly encourage not bringing children, we will have a family room to accommodate advocates who cannot participate without bringing children. This room will have a remote broadcast of the main hall's proceedings, and families will be welcome to join the lunch. Parents will be responsible for their children at all times, and cannot leave a child unattended.

The Lobby Day breakfast will be on Tuesday, February 27th, from 7:00-8:30am at the Washington Court Hotel on Capitol Hill at 525 New Jersey Avenue NW in Washington, DC. Please arrive promptly in order to be seated for remarks from leaders on Capitol Hill. The Lobby Day will take place in House and Senate office buildings on Tuesday, February 27th. You will receive your schedule at the Legislative Conference.

It is important that you use your home address to register so Hill meetings can be scheduled with the appropriate elected officials. 

We do not schedule Lobby Day meetings for members of industry.

For additional information on Rare Disease Week on Capitol Hill, please visit the event homepage at

Please note: The EveryLife Foundation for Rare Diseases reserves the right to use any photograph and/or video taken at this sponsored event without the expressed written permission of the individuals captured within the photograph and/or video. The Foundation may use the photograph and/or video in publications or other media material it produces, uses or contracts to produce including but not limited to websites, brochures, social media, invitations, etc.

The registration deadline for this event has passed.