Write Your Representatives to Bring S. 2465 to the House Floor for a Vote

Sick Cells and the Sickle Cell Disease Association of America asks Advocates to Write Their Representatives to Bring S. 2465 to the Floor for a Vote 

In February 2018, the sickle cell community celebrated with the announcement of two legislative victories in Congress. First, the U.S. House of Representatives passed H.R. 2410 on February 26, 2018, the Sickle Cell Disease Research, Surveillance, Prevention, and Treatment Act, which was introduced on May 11, 2017, by Rep. Danny Davis (D-IL). On February 28, 2018, Senator Cory Booker (D-NJ) and Senator Tim Scott (R-SC) introduced S. 2465, the Senate companion bill to H.R. 2410 in the Senate. The Senate companion bill incorporated changes to include “other heritable blood disorders” in addition to sickle cell disease. The bill passed the Senate on October 11, 2018.

The bill moved back to the House for a final vote before it can become law. It’s vital that the sickle cell disease community contact their House members and ask them to “consider S.2465 for a vote this year.” The new changes to the bill requires the House to vote on it again.



This is a major victory for the sickle cell community to move the bill past the Senate. It has been a long journey. But, we still have work to do to ensure the House passes the bill. Adding a personal touch to your letter is always meaningful. In addition to asking the House to consider the bill for a vote, tell them how sickle cell disease impacts your life and why it is necessary to have federal funding and more research done on it.