A Program of the EveryLife Foundation for Rare Diseases
Call on your Members of Congress to attend the November Rare Disease Congressional Caucus Briefing!
On November 15th, the Rare Disease Congressional Caucus will host a briefing on "Diagnostic Challenges for Rare Disease Patients." This event will brief Members of Congress and staff on challenges to diagnosing rare disease, emerging technologies and possible policy solutions. Rare disease patients often have to see multiple doctors over many years before they receive a diagnosis.
You can find out more about the event by CLICKING HERE or contact Sabah at the EveryLife Foundation at SBhatnagar@everylifefoundation.
Please take a minute to phone your legislators and urge them to send staff to the event!
Enter your street number, street name and zipcode. Then, dial the numbers below and let your legislators know that you'd like them to attend or have their staff attend the next Rare Disease Caucus Briefing on Wednesday, November 15th, at 12:00 pm in 2203 Rayburn House Office Building.
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Please correctly spell out the full address, and do not abbreviate (for example, spell out SAINT PAUL instead of St. Paul).
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