A Program of the EveryLife Foundation for Rare Diseases
Call on your Members of Congress to attend the September Rare Disease Congressional Caucus Briefing!
On September 13th, the Rare Disease Congressional Caucus will host a briefing on "Curing Rare Disease: Policy and Regulation Needed for Emerging Technology." This event will brief Members of Congress and staff on the need for policy and regulation that does not only keep pace in this new era of innovation, but also ensures that patients benefit the application of new technologies to safe and effective treatments.
You can find out more about the event by CLICKING HERE or contact Sabah at the EveryLife Foundation at SBhatnagar@everylifefoundation.
Please take a minute to phone your legislators and urge them to send staff to the event!
Enter your street number, street name and zipcode. Then, dial the numbers below and let your legislators know that you'd like them to attend or have their staff attend the next Rare Disease Caucus Briefing on Wednesday, September 13th, at 12:00 pm in Room 203-02 of the Senate Visitors Center.
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