A Program of the EveryLife Foundation for Rare Diseases
Rare New England Asks Massachusetts Residents to Contact Their State Legislators in Support of MA Rare Disease Advisory Council
Rare New England (RNE) asks Massachusetts residents to call or email state legislators to ask for their support for HB3714, "An Act to Create a Rare Disease Advisory Council.”
RNE has been collaborating with MA State Representative Paul Heroux, who has championed HB3714, since 2015. To learn more about the bill, click here.
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