A Program of the EveryLife Foundation for Rare Diseases
Ask Your Members of Congress to Co-Sponsor the OPEN ACT to Repurpose Drugs for Rare Disease Patients
The EveryLife Foundation asks you to take action to support the Orphan Product Extensions Now, Accelerating Cures and Treatments (OPEN ACT, H.R. 1223 / S. 1509). The OPEN ACT could bring hundreds of safe, effective, and affordable medicines to rare disease patients within the next several years by incentivizing drug makers to repurpose therapies for the treatment of life-threatening rare diseases. EveryLife Foundation, the National Organization for Rare Disorders (NORD), Global Genes, and Genetic Alliance are among the more than 250 patient organizations support this bipartisan legislation.
Please take a minute to contact your Representative and Senators, and then share this action alert on social media with the hashtag #OPENACT! All you have to do is edit the letter below to advocate for your rare disease community, enter your name and address and click submit.
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