A Program of the EveryLife Foundation for Rare Diseases
From California Action Link for Rare Diseases - CAL RARE
Please ask your California State Legislators to join the bipartisan State Rare Disease Caucus
The EveryLife Foundation and CAL Rare are urging California advocates to have their state representatives join the Rare Disease California Caucus. The bipartisan Rare Disease California Caucus is led by Assemblymember and Health Committee Member Rob Bonta (D-Oakland) and Assemblymember and Health Committee Vice Chair Brian Maienschein (R-San Diego) to promote awareness of rare disease issues.
The Rare Disease California Caucus will help to bring public and legislative awareness to the unique needs of the rare disease community - patients, physicians, scientists, and industry. The Caucus will give a permanent voice to the rare disease community in California. Working together, we can find solutions that turn hope into treatments.
Please take just 3 minutes to email your legislators today to ask them to join the Caucus!
CAL RARE is dedicated to improving the lives of rare disease patients in California. We are a coalition of rare disease stakeholders with a goal to raise awareness among the general public and decision makers regarding rare diseases. We want to bring recognition to the issues rare disease patients face and work to ensure access to physicians, treatments, and social services.
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